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Increasing
Capabilities Access Network
26
Corporate Hill Dr.
Little Rock, Arkansas
72205
(501) 666-8868 (TDD/Voice)
or
1-800-828-2799
1999 The ICAN Project is committed
to the idea that persons with disabilities can reach their full potential,
participate, and be productive members of their communities if they have the
"tools" or technology available. ICAN is a program of the Arkansas
Rehabilitation Services under P.L. 100-407, the Technology Related Assistance
for Individuals with Disabilities Act of 1988. It is funded by a grant
(H224A90020-99) from the National Institute on Disability and Rehabilitation
Research (NIDRR), U.S. Department of Education. The contents of this publication
do not necessarily reflect the views of the U.S. Department of Education, NIDRR,
Arkansas Rehabilitation Services, or ICAN and do not imply endorsement by the
State Government of Arkansas or the U.S. Government.
How to Use This Manual
This manual is designed for
easy use by consumers and their families. We have used larger type to make it
more easily read. It is also available in alternative formats.
Before addressing funding
sources in the manual, we provided information about ICAN, Increasing
Capabilities Access Network, and its services. We also defined "tools for
living, learning and working," which is the term we use for assistive technology
and related services. The categories of equipment and services used throughout
the manual are explained. Tips to help you in your search for funding are
available in "Finding Your Way Through the Funding Maze."
Sections on Public and
Private Funding Sources in Arkansas identify existing funding sources and
provide information in an easy-to-read format so that the reader can quickly see
if a particular source is applicable to an individual's needs. Charts have been
provided identifying the types of disabilities, technology and services that may
be funded with a star, based on information we have received from public and
private funding sources. "Helpful Hints" are provided throughout the manual.
As you read through the
sections on funding sources, keep in mind two important points: (1) Most funding
sources approve technology on an individual-by-individual basis; and (2) The
availability of funding often changes, sometimes very quickly. It is critical
that you double check to make sure a particular funding source is still funding
the technology and services designated in this manual. Unfortunately, our system
is far from perfect and there are no guarantees specific needs for technology
and related services.
Information about housing
programs and work incentive programs of the Social Security Administration is
separated from other funding sources. While these programs do not provide funds
specifically for the purchase of technology, some do provide ways in which
consumers can get assistance in modifying homes or in which funds spent on
job-related tools can be excluded from income when determining if a person is
eligible for financial assistance. Finally, in the section on "Where To Go For
Help," we have provided a comprehensive listing of important programs and
services that can provide assistance to readers in their search for funding for
tools for living, learning and working.
It is our sincere hope that
you will find this manual valuable in your search for funding. If we may be of
further service to you, contact us at: ICAN, 2201 Brookwood, Suite 117, Little
Rock, AR 72202, (501) 666-8868, or 1-800-828-2799 (Voice/TDD).
Table of Contents
Public Funding Sources In
Arkansas:
An Overview of the Service Delivery System
Children's Services
Child Health Services-EPSDT
Child Health Services-TEFRA
Children's Medical Services
Early
Intervention Services
ARKids
1st
Developmental Disabilities Services
Home
and Community-Based Waiver
Developmental
Disabilities Services
Educational Services
Public School Services
Vocational
Education Services
Independent Living Services
For People who are Blind or Visually Impaired
For Older People who are Blind or Visually Impaired
For People who are Deaf or Hearing Impaired
For People with Disabilities
Medical Assistance for People with
Disabilities
Services for Older Persons
Medicare Services
Services for People with Spinal Cord
Disabilities
Services for Adults (21-65) with
Physical Disabilities
Supported Employment Services
Veteran's Services
Vocational Rehabilitation
Services
For People who are Blind or Visually Impaired
For People who are Deaf or
Hearing Impaired
For People with Disabilities
Arkansas Technology Revolving Loan
Fund
Private Funding Sources
Private Health Insurance Companies
Workmen's Compensation
Hear Now Hearing Aid Assistance
Housing Programs For People With
Disabilities
Social Security Administration
Who Can Receive SSDI
Who Can Receive SSI
Work Incentives for SSDI
Work Incentives for SSI
Social Security Appeals Process
Where To Go For Help
Advocacy Organizations
Area Agencies on Aging
County Department of Human Services (DHS) Offices
Educational Cooperatives
Migrant Educational Cooperative
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About (ICAN)
Increasing Capabilities Access Network
ICAN, Increasing Capabilities Access Network, is a
program of Arkansas Rehabilitation Services. ICAN
was set up to help build a bridge between people
with disabilities who need technology information
and those who provide it. While ICAN does not
directly offer assistive technology, or tools for
living, learning and working, it has built a
statewide network of resources related to assistive
devices.
Among ICAN's goals is the provision of a FREE
information and referral system. This system allows
all Arkansans to get information regarding assistive
technology and services. The quarterly ICAN Update
is just one of the many informational items
available from ICAN to keep Arkansans up-to-date on
the latest news on "tools for living, learning and
working." ICAN provides information in print, large
print, Braille and audio cassette by request.
As part of its program goals, ICAN provided funds to
seven Assistive Technology Clearinghouse Regional
Sites to provide technology-related information and
services. The regional sites serve people of all
ages and disabilities. They provide FREE information
and hands-on demonstrations concerning assistive
devices for consumers, families, employers,
businesses and the general public. In addition, the
regional sites provide assessments, evaluations and
other services such as therapy and device
construction. Some services are provided for fees.
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ICAN also established an
Equipment Exchange, which provides a way for people with disabilities to sell,
trade, or loan adaptive equipment that is new or no longer needed. Items that
might be listed on the Exchange include, but are not limited to, the following:
wheelchairs, reachers, computers, wheelchair lifts, accessible vans, walkers,
hospital beds, Braille writers and TDDs. To list equipment on the exchange or to
find out what equipment is listed, contact ICAN.
ICAN is also dedicated to
training individuals with disabilities, families, employers, educators and
professionals. Training is provided locally, regionally and statewide. Topics
vary widely from modification of toys with switches to advocacy tips.
For more information about
the services of ICAN and its Regional Centers, or information relating to
technology, please contact:
Increasing Capabilities
Access Network
26 Corporate Hill Dr.
Little Rock, AR 72205
(501) 666-8868 or
800-828-2799 (Voice/TTD)
What are Tools for
Living, Learning and
Working?
"Tools for living, learning,
and working" are types of equipment or devices that help people to live, learn
and work more independently. There are many kinds of tools that exist or might
be modified to meet the unique needs of a particular individual. Tools may be
simple, like a long drinking straw, or very complicated, like computers that can
track the movement of a person's eyes. There are so many types of tools that it
would be impossible to discuss them all in this manual. For convenience, we
divided these tools into the main categories described below.
Adaptive Exercise Aids
-These tools help people to get the exercise they need to be healthy. Examples
of these types of tools are hand weights with specially designed grippers,
adapted exercise machines for people in wheelchairs, and mechanical devices that
help keep injured joints mobile and build muscle strength.
Adaptive Sports and Leisure
Aids -Tools in this category help people to participate in sports or leisure
activities. Bicycles with hand pedals, portable handrails that enable people
with visual impairments to bowl and specially designed equipment that enables
people who use wheelchairs to water or snow ski fit into this category.
Alerting Devices - These
tools alert people to emergencies or other types of concerns in ways other than
just sight or sound. For instance, a person with deafness might use an alarm
clock that flashes light or is connected to a vibrator. A signal at a street
corner that announces "you may walk now," enables people with limited vision, or
limited judgement, to know when to cross the street safely.
Assistive Listening Devices
- These tools would help a person with hearing loss to better hear and
distinguish sounds. Examples of this kind of tool are amplified telephones and
loop systems used in auditoriums to help people with hearing loss to hear
meetings and productions.
Augmentative Communication
Aids - Tools under this category help people to better communicate with others.
A communication board is one example. With this tool, a person points to a
letter, word or picture that communicates thoughts and needs to others. Other
devices use synthesized speech to communicate the word or letter that is touched
on a keyboard.
Bathroom Equipment - People
can have greater independence in the bathroom with these tools. Some of these
tools are in public restrooms that are accessible to people with disabilities,
like higher toilet seats, handrails and modified handles on faucets. Tools used
primarily at home include a modified toothbrush or a shower stall that is
adapted for a wheelchair.
Braille & Tactile Aids -
Braille is a language of raised dots that enables people with limited vision or
blindness to read. The word tactile means tools that allow people to use their
sense of touch in place of their sight. For instance, raised lettering in
elevators tells a person with blindness which button to push for the 7th floor.
Raised numbers on room doors enable hotel guests with visual impairments to find
their rooms. Raised dots placed on an oven control let a person set the correct
temperature for a holiday dinner.
Computer Hardware - Computer
hardware refers to pieces of computer equipment such as hard disks, monitors,
mice, keyboards, and printers. Hardware can be used off the store shelf or
modified to meet the unique needs of an individual, such as an expanded
keyboard.
Computer Input and Output
Access Aids - These tools help people communicate with computers in different
ways. For instance, instead of having to touch the keyboard, a person could
communicate with a computer simply by talking to it. A computer might be made to
give spoken instructions to the user, such as "You may turn off your computer,
now." This helps people who have difficulty reading the screen to know what is
written on it.
Computer Software - Software
is the name given to programs that make computers work. In other words, software
tells the computer what to do and how it should respond to the user's commands.
There are hundreds of types of computer software that range from specialized
teaching programs to programs that allow documents to be printed in sign
language or braille.
Eating and Food Preparation
- Any tool that helps a person to eat or prepare food is included in this
category. The tools may be as simple as bent straws or silverware that is
specially designed to make it easier to hold. They may be very complicated, like
modified controls on a microwave oven, a specially designed can opener, or a
machine that actually feeds a person without use of arms or hands.
Hearing Aids
- These tools help people with loss of hearing to hear better by magnifying the
tone and volume of sounds. Hearing aids are not all alike and should be selected
or designed to meet the unique hearing needs of the person.
Low Vision Aids
- These tools help people with limited vision to see better. Magnifying devices,
large print books and large screen TVs are among the tools in this category.
Mobility Aids
- This is a big category of tools that help people to have greater independence
in getting from place to place. Wheelchairs, scooters, walkers, and motorized
grocery carts are common mobility tools.
Orthotics and Prosthetics
- These tools help people without functional limbs and other body parts.
Artificial limbs, braces, splints, and crutches are some of the tools in this
category.
Personal Care Aids
- These tools help people to be more
independent in their personal care, like dressing, personal hygiene and
grooming. Tools in this category include tools like velcro closures on clothes
in place of buttons or specially designed hairbrushes that can be more easily
held.
TDD Equipment
- The TDD (Telecommunication Device for the Deaf) is a tool that allows people
with a hearing or language impairment to communicate by telephone. The TDD
caller types a message on a keyboard which is relayed through the phone line.
The message then appears on the screen of a TDD at the other end of the line.
Both the sender and the receiver must have a TDD to make it work. TDD and TTY
are also used to identify these types of devices.
Transfer Aids
- Transfer aids help people to move from one place to another. For instance, a
person who uses a wheelchair may use a cradle lift to get into the bathtub.
Another person might use a trapeze above his bed to transfer into a chair.
Vehicle Modifications
- These tools adapt regular vehicles so that people with disabilities can drive
or ride in them. An electric lift might be needed to help a person in a
wheelchair get into a car. Some adaptations enable the driver to control the
brakes and acceleration with their hands, rather than their feet.
Voice/Audio Output Aids
- These tools help people to speak
to others or provide spoken information. For instance, a device that fits under
this category is a sound magnifier that helps a person who has damaged vocal
cords to be heard by others. A personal reader that translates the written word
into the spoken word is also in this category.
Types of Technology Services
Information and Referral
- These services describe efforts to
provide information about types of tools and services that are available as well
as resources to help you to get the services you need.
Assessment/Evaluation
- In these services, a team, which would likely include the individual, family
and one or more professionals, evaluates a person's need for technology. The
assessment should also identify the specific types of tools or adaptations that
might be appropriate for the individual.
Training
- Many tools require special training in order for a person to use them
properly. This training may include how to keep them in good working order.
Maintenance and Repair
- Maintenance and repair are services that are necessary to ensure proper
performance of tools for living, learning and working. Some devices, like
electric wheelchairs, require periodic maintenance and specialized repair
services.
Finding Your Way Through the
Funding Maze
Ironically, most children
and adults with disabilities who need assistive technology are the least able to
afford these tools. They must then look to other funding sources. Unfortunately,
finding the right source(s) of funding is often a most difficult task for
several reasons. The simple fact that there are many potential funding sources
makes it hard to even begin the hunt, particularly in light of fluctuating
funding cuts. Many times there is a lack of coordination among the funding
sources that do exist, and it isn't always clear who really makes the funding
decisions. Furthermore, because the whole field of technology is relatively new
in human services, many agencies don't have specific guidelines for funding
technology. When guidelines do exist, they vary drastically from one funding
source to another. The fact that each person's abilities, needs and situation
are different and distinct makes the process even more confusing.
This funding guide was
developed to help people needing technology and their families to get the tools
and services they need to live, learn and work more independently. The
information in the following pages is provided to simplify your journey through
the funding maze in Arkansas. Information presented will facilitate your use of
the sections on public and private funding sources.
Important Questions to Ask
In every situation, the
unique abilities, needs and circumstances of the individual define the kind of
tools that will help that person achieve greater independence in living,
learning or working. They also determine the most likely funding sources. So, it
is important to ask these questions early in the search. A written record of
this information will help in your search.
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What is the person's
age?
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If under 21, is the
child receiving special education?
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What was the person's
age at the onset of the disability?
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Is the tool necessary
for a child to benefit from education?
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What label/disability
does the person have, i.e. cerebral palsy, neurological impairment, spinal
cord injury, etc.?
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Is the disability short
term or long term?
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Was the person's
disability related to employment or military service?
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What is the living
situation of the person?
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What is the individual's
(or family's) financial situation?
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Is the person covered by
private health insurance?
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Is the person eligible
for Medicare or Medicaid coverage?
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Is the person receiving
SSI or SSDI?
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What type of tools does
the person need to live, learn or work more independently?
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Will the tool(s) help
the person get or continue employment?
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Will the tool(s) help
the person to live more independently or to improve their overall health?
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Can the tool(s) needed
be rented?
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Is training necessary to
use the tool?
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What services are needed
to follow-up, i.e. training, repair, etc.?
Once these questions are
answered, there should be enough information to begin the search for funding.
There are many possible funding sources which have been listed in this manual in
an easy to use format. It is important to remember that while there is no one
specific method that will assure funding for tools or services, your search will
be easier if there is a basic understanding of the service system for people
with disabilities in Arkansas.
An Overview of the Service
System in Arkansas
Most human services in
Arkansas are provided by, or through, state agencies, including, but not limited
to, the Department of Education and the Department of Human Services, which
serves as an umbrella agency for divisions that address specific human needs.
The following brief descriptions of state services that are of particular
interest to Arkansans with disabilities will give you an idea of the complexity
of the system. Information more specifically related to technology is provided
later in this guide. Agencies having a home page on the world wide web can be
located from
www.state.ar.us/directory/
Arkansas Department of
Education (ADE). The Department of Education is responsible for ensuring that
quality education is provided for all students in Arkansas public schools. Under
Federal law, the Department also has the primary responsibility for ensuring
that all children with disabilities have the right to receive a free appropriate
public education, regardless of the nature or degree of their disabilities,
through local school districts. ADE's Educational Equity Assistance Center
provides technical assistance to local districts and monitors compliance with
federal civil rights mandates including Title IX, VI, Section 504 of the
Rehabilitation Act of 1973 and the Americans with Disabilities Act of 1991.
Contact: Your local school district to receive special or regular education
services.
http://arkedu.state.ar.us
Department of Workforce
Education (DWE). This Department's mission is to provide the leadership to
develop an educated, trained and retrainable workforce. DWE provides many
services geared toward this end and the Special Needs Section of DWE helps to
ensure successful training and job placement for students with disabilities.
For more information
contact:
Special Needs Program
Three Capitol Mall, Luther
S. Harding Building, Room 305
Little Rock, AR 72201-1083,
(501) 682-1800
www.work-ed.state.ar.us
Arkansas Rehabilitation
Services (ARS). Arkansas Rehabilitation Services (part of DWE) is responsible
for providing vocational and other rehabilitative services to individuals with
physical and/or mental disabilities. Services to eligible persons may include
the following: medical diagnosis; counseling and guidance; comprehensive
evaluation; medical and surgical treatment; job placement; assistance with
self-employment; vocational training; adaptive technology; housing and
transportation assistance; and information and referral. Any Arkansas resident
who has a physical or mental disabilities resulting in a vocational handicap and
has a reasonable chance of becoming gainfully employed or returning to a gainful
occupation after receiving rehabilitation services may be eligible. Individuals
whose disabilities are so severe that they are unable to work without long-term
support may be eligible for supported employment. Any individual who has a
severe physical or mental disability and has a reasonable chance of becoming
more independent following the provision of services through the Independent
Living Program may be eligible. Contact your local county office.
www.state.ar.us/ars/
ARS Office of the Deaf and
Hearing Impaired (ODHI). Under Arkansas Rehabilitation Services, the Office for
the Deaf and Hearing Impaired is committed to a continuing effort to educate the
public, especially employers, about the needs and abilities of people with
hearing impairments. This is accomplished through workshops, seminars, and sign
language classes to groups and organizations, including public schools and state
employees. ODHI cooperates with civic groups in providing telecommunication
devices for persons who are deaf and hearing impaired and provides relay message
service.
For more information
contact:
ODH
1616 Brookwood Drive
Little Rock, AR 72202
(Voice) (501) 296-1635
(TDD) (501) 296-1670
ARS Housing Office. Also
under Arkansas Rehabilitation Services is the ARS Housing Office. This office
provides assistance in helping people secure affordable housing and supported
living opportunities.
For more information
contact:
ARS Housing Office
Hot Springs Rehabilitation
Center, 8th floor
Hot Springs, AR 71902
(501) 624-4411, extension
#380
Arkansas Department of
Health (ADH). The mission of the Arkansas Department of Health is to promote and
protect the public health and well being of the citizens of Arkansas. Through
county offices, the ADH provides a wide range of preventive and protective
health care services which are accessible to all Arkansans.
For
more information contact:
Bureau of Community Health
Services,
4815 W. Markham, Slot 2,
Little Rock, AR 72205
(501) 661-2167
http://health.state.ar.us
Arkansas Department of Human
Services (DHS). The Arkansas Department of Human Services exists to provide
quality services, within available resources, which enable people to maximize
their potential and to increase their abilities; preserve and enhance human
dignity and worth; and prevent or reduce the need for services. The department
has separate divisions that address specific needs. In addition to those
described in detail below, DHS includes Divisions of Volunteerism, Finance and
Management Services.
For more information
contact:
Department of Human Services
325 Donaghey Bldg
P. O. Box 1437, 7th & Main,
Little Rock, AR 72203-1437
(501) 682-8650
www.state.ar.us/dhs
DHS-Division of Aging and
Adult Services (DAAS). The Division of Aging and Adult Services is responsible
for planning, coordinating, funding and evaluating programs for older persons.
The Area Agency on Aging (AAA) in each planning/service area is the
community-based agency which delivers local services.
For more information
contact:
Division of Aging and Adult
Services
1417 Donaghey Plaza South
P. O. Box 1437
Little Rock, AR. 72203
(501) 682-2441
DHS-Division of Children and
Family Services (DCFS). The mission of the Division of Children & Family
Services is to improve the quality of life for Arkansas' children and their
families by creating and maintaining an integrated system of effective service
delivery adhering to the principles of prevention, permanency planning and least
restrictive environment. Services are provided for abused/neglected children and
youth, juveniles in need of supervision, juvenile delinquents and emotionally
disturbed children and youth.
For more information
contact:
DCFS
626 Donaghey Plaza South
P. O. Box 1437
Little Rock, AR 72203-1437
(501) 682-8008
DHS-Division of
Developmental Disabilities Services (DDS). The Division of DDS is responsible
for the provision of services to people with developmental disabilities
including those with autism, cerebral palsy, epilepsy, mental retardation, and
other conditions that cause a person to function as if he/she were mentally
retarded. DDS operates six institutions, or Human Development Centers (HDCs),
which are licensed as Intermediate Care Facilities for the Mentally Retarded
(ICFs/MR). DDS also provides services through a Medicaid waiver and oversight
for private nonprofit community based programs. Field counselors provide case
management services to individuals with disabilities and their families
throughout the state. DDS also serves as the lead agency for early intervention
services for children with disabilities aged 0-2.
For more information
contact:
DDS
P. O. Box 1437
Little Rock, AR 72203-1437
(501) 682-8703
DHS-Division of Medical
Services (DMS). This Division manages Arkansas' federal and state Medicaid
program, including Children's Medical Services, Home Care for Children (TEFRA),
Early and Periodic Screening, Diagnosis and Treatment (EPSDT), determination of
eligibility for ICF/MR level and other nursing home services.
For more information
contact:
Division of Medical Services
P. O. Box 1437, Slot 111
Little Rock, AR 72203-1437
(501) 682-8732
(
800)-482-5431
DHS Division of Mental
Health Services (DMHS). The Division of Mental Health Services provides, or
contracts for, mental health services in Arkansas. There are fifteen (15)
community mental health centers throughout the state where services are
provided. Services include but are not limited to: assessment, therapy,
consultation, and referral.
For more information
contact:
DMHS
4313 W. Markham
Little Rock, AR 72205
(501) 686-9000
(501)686-9176
(TDD)\
DHS Division of Services for
the Blind (DSB). Division of Services for the Blind is responsible for providing
or purchasing the following services: referral and counseling; independent
travel skills training; rehabilitation teaching in the consumer's home and
community for independent living; remedial education; pre-vocational evaluation;
career and skill counseling; occupational skill development; vocational
training; job retraining; sheltered workshops; vocational placement; follow-up
services; and training in food service management.
For more information
contact:
DSB
522 Main, Suite 100
Little Rock, AR 72201
(501) 682-5463
(800) 960-9270
Housing and Urban
Development (HUD). The U.S. Department of Housing and Urban Development is
responsible for providing direct loans for persons who are elderly or
handicapped. Through the Section 8 Housing Program, HUD provides rental
assistance to eligible residents by reimbursing housing owners for all or a
portion of rent. Through Section 202 Housing Program, HUD provides direct
federal loans to assist private, non-profit corporations in the development of
housing for adults who are elderly, physically disabled, developmentally
disabled or chronically mentally ill.
For more information
contact:
HUD
Little Rock Office, Region VI
425 West Capitol, Suite 900
Little Rock, AR 72201
(501) 378-5961
www.hud.gov
Arkansas Spinal Cord
Commission (ASCC). The Arkansas Spinal Cord Commission was established to
provide a coordinated approach to early recognition, emergency care, definitive
treatment and rehabilitation services to individuals with spinal cord injuries.
ASCC provides statewide comprehensive case management to all eligible persons
with spinal cord disabilities. Case manager's roles include assisting
individuals in obtaining needed adapted equipment, making referrals for
vocational rehabilitation services, Medicaid and state supplemental income,
finding accessible housing, counseling, advocacy, assistance in purchasing
medically prescribed equipment and supplies, and lifelong follow-up services.
For more information
contact:
ASCC
1501 N. University, Suite
470
Little Rock, AR 72207
(501) 296-1788 (Voice)
(501)-296-1794 (TDD)
Social Security
Administration (SSA). Supplemental Security Income (SSI) and Social Security
Disability Income (SSDI) are federal programs that provide monthly benefits to
people who are aged, blind and/or disabled and who have little resources and
income. SSA determines eligibility, makes basic payments, and maintains a master
record of recipients.
For more information
contact:
SSA,
700 W. Capitol
Little Rock, AR 72201
1-800-772-1213
www.ssa.gov
Many other
disability-related services and organizations that provide advocacy, services
and other assistance for individuals with disabilities and families are listed
in the "Where To Go For Help" section of this manual. You might also look in the
"Social Service Organizations" section of your local yellow pages for other
organizations that might be of help locally.
Planning a Funding Strategy
The funding strategy below
provides ten steps that will help you decide where to begin your search for
funding.
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Step 1:
Recognize and identify the problem.
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Step 2:
Document what needs exist.
-
Step 3:
Identify the equipment and/or services needed. Some of the potential funding
sources noted in this manual also provide assessments and evaluations to
determine the type of technology or tools that a particular person needs.
-
Step 4:
Secure the necessary prescriptions and other justification (records, support
letters and evaluations).
Helpful Hints
For Medicare and many other
sources of funding, a tool must be determined to be medically necessary in order
to be funded. Medical necessity exists when the item is a part of the
physician's course of treatment and when a physician is supervising its use
directly. Although a therapist may be providing the treatment, the prescription
must be from and signed by a doctor. Your doctor may also be willing to write a
letter substantiating this item is a medical necessity--a very helpful item.
Letters from other professionals involved in the case, such as therapists,
counselors, teachers, direct care workers and others are recommended and make
the case stronger.
In addition, the following
information may prove helpful: a general discussion of medical diagnosis that
may further provide specific medical information and needs; a photograph of the
individual; a discussion of the tools and services needed with specific reasons
as to why they pertain to the individual; explanation of the individual's
functional skills without the equipment and how they will be improved with the
tools and services; and specifications of the equipment including cost and a
photograph or catalog picture and description.
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Step 5:
Determine if there's an alternate way to get the equipment needed rather
than to purchase it. For instance, can the equipment be rented instead of
purchased? Is it available via ICAN's Equipment Exchange for loan or for a
reduced price?
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Step 6:
Determine if the particular tool
desired is really cost-effective. Questions like these will help: Is the
expense reasonable when compared to the therapeutic benefit? Is the
equipment or service more costly than another option or alternative that
would serve the same purpose? Does the item serve the same purpose as
equipment that is already available to the consumer? Many funding sources
may want to ensure the cost-effectiveness of a tool or device before
considering purchase and whether the cost is reasonable and at the customary
rate. This is particularly true for insurance companies.
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Step 7:
Determine potential funding sources. You may find that many funding sources
require a refusal from an insurance carrier before considering funding
equipment (tools) or services, if private health insurance is carried.
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Step 8:
Get, complete and submit an application for funding.
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Step 9:
Search for co-payment options, if necessary.
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Step 10:
Follow the appeals process, if you believe you have been denied fair
treatment in decisions relating to your application for services. At the end
of every funding source description is a notation about the appeals process
for that source. A list of organizations and agencies that may be helpful to
you in obtaining funding for tools and services for living, learning and
working is provided in the section on "Where To Go For Help" in this manual.
Advocacy Tips
The following tips on how to
be a good advocate will be helpful to you in contacting various funding sources.
-
Be polite and pleasant,
but always business-like.
-
Communicate in writing
whenever possible. (If you communicate in conversation, write a letter to
confirm the conversation and ask for a reply if you haven't clearly
communicated what was said. Maintain regular continuity with the funding
source and do not permit time gaps of three or more months between
communications.
-
Direct letters or calls
to the same person each time; encourage a positive working relationship.
-
Offer your cooperation
and willingness to prove medical necessity and show how it will benefit the
consumer and the funding source.
-
When questioned, try to
educate and inform in an assertive fashion, emphasizing the long-term
monetary benefits to the funding source.
-
Never threaten with
legal action. This is heard often and will not intimidate any agency or
insurance company.
-
When someone (a case
manager, therapist, durable medical equipment [DME] dealer, etc.) "goes that
extra mile" to help your cause, express your sincere thanks and
appreciation.
-
Thoroughly document all
written and verbal communications.
-
Be patient and
diplomatic while being persistent and enduring, or stated another way, you
should "SPAR"--Show Patience And Respect.
-
Being prepared also
means thinking about objections that the funding source could present to
your request. While you can't prepare for every objection or excuse that
might be prevented, you may find it helpful to think up responses for these
common excuses for NOT funding assistive technology.
The law says we
can't help you.
We would like to provide
you funding, but we have limited resources.
We are payer of last
resort, so come back to us after you have exhausted all other resources.
We don't agree these
needs could be met by assistive technology. What you want costs too much! We
have limits on what we can spend on a single client.
You are not eligible for
services from this agency.
Although this kind of
device would be optimum for your needs, we are not required to provide that
level of service.
Talk to your insurance
company. This is who should assist you. We can put you on a waiting list.
Our professional experts
don't agree with your assessment of needs.
Remember. . . DON'T GIVE UP!
Persistence is the most important
part of advocacy! If you need help, consult the "Where To Go For Help" section
of this manual or contact ICAN at 1-800-828-2799. (Voice/TDD).
Appealing Decisions
Hopefully, all will go
smoothly in your search for funding for tools for living, learning and working.
However, if you should be denied funding or services from public agencies, you
have the right to appeal. Appeals processes vary from one funding source to
another. Therefore, you should be sure to request a written copy of the
particular agency's appeal procedures.
Some appeals procedures are
"informal". This means that the process offers the possibility of resolving
problems without following strict rules. For instance, an initial step might be
a meeting with the person providing the service to see if a resolution to the
disagreement can be reached. A more "formal" procedure would be one in which a
hearing would be held before a third party, like an impartial hearing officer or
professional mediator. Often agencies have policies that include both informal
and formal procedures.
Because policies of appeals
are sometimes complicated and vary so widely, it would be difficult to provide a
detailed description of each agency's appeals process in this manual. Where
possible, the appeals procedures for various funding sources have been
summarized under the "What if services are denied" question in the description
of each funding source. The advocacy tips listed below should help you no matter
what specific guidelines define a particular appeals process:
Pursue your concerns
quickly. Some appeals procedures have very short timelines in which to appeal
decisions that are made.
Request a complete copy of
the appeals process and your rights in that process. You should be able to get
this information when you first apply for services, so that you will already
have it should any problems occur.
Make sure your concerns are
expressed and documented when you have conversations. Keep a phone log, noting
the person with whom you spoke, the issue, what the person said, what was
decided and any type of follow-up action. Such conversations should be
followed-up with written confirmation.
Always make the request for
review or appeals processes in writing. This is your only documentation that you
did make such a request. Keep copies of all correspondence! Make a home file and
keep everything! These can be very important in your case.
Be sure to date your letters
and to note the date on letters that are provided to you in return. These dates
may be important in meeting the timelines set out in the appeals process.
A general rule of thumb is
to start with the easiest appeal alternative. Sometimes, problems can be worked
out informally and with cooperation of service providers. This type of informal
resolution to the problem helps to maintain good working relationships with
providers and doesn't require as much time and effort on your part!
Get an advocate, if you feel
that you need support. In many cases, another person, a family member or friends
might be helpful to you in deciding what to do. In some formal procedures, you
may even need representation of an attorney. The Disability Rights Center and
your local Legal Services corporations have advocates and attorneys on staff
that may be resources for individuals with disabilities. The Disability Rights
Center's address and phone number are listed in the "Where To Go For Help"
section of this manual. There are other resources listed in this section as
well.
Don't be afraid to pursue a
more formal procedure. Sometimes, procedures such as a formal hearing are
necessary in order to reach a fair decision. While the more formal procedure
usually takes more time and more precise information about the problem, these
kinds of meetings are still simpler than pursuing court action.
Public Funding Sources in
Arkansas
Children's Services
Child Health Services --
EPSDT
For more information
contact:
Division of Medical Services
Department of Human Services
P. O. Box 1437, Slot 1101
Little Rock, AR 72203
(800)-482-1141
(501) 682-8297
or contact your county DHS
office listed in the "Where To Go For Help" section of this manual.
What does the program do?
Early and Periodic Screening, Diagnosis and Treatment (EPSDT) is not a program,
but a category of Medicaid that funds health services to eligible children. It
is funded through Federal Medicaid funding and matching state funds.
Who can receive services?
Children can receive services
through this funding category if they are under age 21 and eligible for
Medicaid. There are several categories of Medicaid eligibility and each category
has unique financial, disability and living arrangement requirements. Current
guidelines are available from your county DHS office listed in the "Where To Go
For Help" section of this manual.
People with the following
disabilities may are served:
-
Blind/Deaf
-
Hearing Impairment
-
Learning Disability
-
Mental Retardation
-
Neurological Impairment
-
Other Health Impairment
-
Physical/Movement Disability
-
Psychological/Emotional Impairment
-
Speech/Language Impairment
-
Visual Impairment
Other:
DMS pays for ANY medically
necessary treatment for children/youth with or without disabilities.
Following tools marked may
be funded:
Other:
Everything purchased through
Medicaid is based upon a medical necessity. Many of the items noted above as
"may be funded" are not automatically available, but subject to a review
process. *Low vision aids include glasses only. Artificial larynxes are not
covered.
What if services are denied?
If you are denied Medical/Medicaid Assistance, you may file a request for a
hearing. A request for a hearing must be received in the DHS Office of Chief
Counsel in the Appeals and Hearing Office no later no later than 30 days from
the date of the written Notice of Action, which is provided to you if, and when,
services are denied. A hearing will not be granted when Federal or State law
requires automatic reductions in Medicaid Assistance.
You may request a hearing in
one of three ways:
-
(1) Complete an Appeal
for a Hearing form;
-
(2) Complete the back
side of the Notice of Action; or
-
(3) Take a written
request for a hearing to your county DHS office (see "Where To Go For Help"
section of this manual) or to the Appeals and Hearings Office of the Office
of Chief Counsel of DHS located in the Donaghey Building at 7th Street and
Main Street in Little Rock.
If you would like the
hearing to be held in your home or at a location other than the county DHS
office, you should make sure that you tell the Appeals and Hearing office this
in writing.
You may withdraw an appeal
at any time in the appeals process. If you do, you will be asked to sign either
a statement to this effect or to sign a Withdrawal of Request for fair hearing
form.
The county office is
responsible for providing an office in which the hearing can be conducted in
privacy. The county office will also appoint a county representative prior to
the time of the hearing. This person should be familiar with the case and able
to answer questions from you, your representative or advocate, and the hearing
officer.
The county office may have
legal assistance in preparing for the hearing and at the hearing. The hearing
will be conducted by a Hearing Officer from the Appeals and Hearings Office of
the DHS Office of Chief Counsel. No person who had any part in the decision
being appealed can serve as the hearing officer. At the hearing, you may
represent yourself or you may be represented by a friend, advocate or attorney.
The hearing officer may not
review the case record or other material either prior to, or at the time of the
hearing, unless such material is also made available to you or your
representative.
The hearing should be
conducted in an informal but orderly manner. The hearing officer should explain
the hearing procedure and a county representative will read the county office's
hearing statement aloud. The county office will present its case which may
include presenting evidence and questioning witnesses. Then you or your
representative can present your case, including presenting witnesses, offering
arguments or providing additional evidence. The county office may cross-examine
your witnesses and you may question the county office representative or
cross-examine any of the county's witnesses. You may also question or disagree
with any testimony/information presented. If you have trouble presenting
information, the hearing officer is allowed to help you.
The hearing officer will
prepare a final order based on a comprehensive report of the hearing. The final
order will be mailed to you. The whole appeals process should not take longer
than 90 days from the date of receipt of your request for an appeal.
If you are not satisfied
with the decision, you have the right to a review of the decision by a county
circuit court. If you wish to do this, a petition must be filed in the county
circuit court within 30 days from the date that you receive the Final Order.
Child Health Services
Through TEFRA
For more information
contact:
Division of Medical Services
Department of Human Services
P. O. Box 1437, Slot 1101
Little Rock, AR 72203-1437
(800)-482-5850,
ext. # 22277
(501) 682-8230
or contact your county DHS
office listed in the "Where To Go For Help" section of this manual.
What does the program do?
TEFRA is Medicaid demonstration waiver that provides funding for cost-effective
services to keep children with severe disabilities out of nursing homes and
other institutions when they are not financially eligible for SSI because of
family income. Children must meet the requirements noted below to be
eligible. Funds under this category are through the Tax Equity and Fiscal
Responsibility Act of 1982, TEFRA. Premiums are charged for this program
based on family income (sliding scale). Services provided are the same as
those provided for a child on Medicaid.
Who can receive services?
Children may be eligible for
TEFRA if:
-
They have a disability according to the SSI definition;
-
Treatment severe enough to require institutionalization is needed,
but it is more cost-effective to care for the child at home; AND
-
The child's income is less than three times SSI.
In addition, eligibility for
TEFRA
will depend on one of the
following:
-
(1) a plan of care
prescribed by a physician requiring that the child get daily use of a
certain technology/tools or services
-
(2) that special
technology/tool-related medical care is needed if the child is at risk for
institutionalization
-
(3) that parents receive
special training to implement the medical portion of the plan for the child
-
(4) that the child would
be unable to do activities of daily living proper for his/her age without
help of a care giver or related services.
People with the following
disabilities are served:
Following tools may be
funded:
-
Augmentative
Communication Aids
-
Bathroom Equipment
-
Hearing Aids
-
Low Vision Aids
-
Mobility Aids
-
Orthotics and
Prosthetics
-
Personal Care Aids
-
Transfer Aids
-
Vehicle Modification
-
Voice-Audio Output Aids
-
Following services are
offered:
-
Assessment/Evaluation
-
Information & Referral
-
Maintenance/Repair
-
Training
What if services are denied?
If there is a disagreement
with a decision or the way in which services are provided, a person or family
may contact the supervisor of their local county DHS office, noted in the "Where
To Go For Help" section of this manual. A general description of the Medicaid
appeals process is provided in this manual on page 27 under the "What if
services are denied?" question. You have a right to receive a written copy of
your rights as a recipient of services. Ask for a copy of these guidelines at
your county DHS office.
Helpful Hint
Children's Medical Services
can assist families in applying for services under this funding category.
For more information
contact:
(800)-482-5850
(501) 682-2277.
Children's Medical Services
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